The national clinical programme for palliative care is pleased to present the second edition of the palliative care Glossary of Terms (the palliative care glossary). This document was developed as part of a process to promote clarity and consistency in the way in which we speak about palliative care and the services that are provided to people with palliative care needs. It was developed in consultation with stakeholder advisory groups to the programme.
This booklet has been developed by the Palliative Care Senior Nurses Network as an aid for people seeking information about palliative care. The term palliative care can raise a number of important questions. The purpose of this booklet is to help people ask the questions they need to gain the information they need about their own illness or their loved ones illness and what role palliative care can provide.
Download booklet: Palliative Care: Asking the questions that matter to me
This is a guide to some words and phrases you may hear when planning or discussing endof-life care and treatment.
Download: Common Words and Phrases
This factsheet is a quick guide to your rights at the end of life in Northern Ireland.
Download: Your Rights in Northern Ireland
When you have a serious illness there are things to consider. This could be for you or for those around you.
You may want to think about your quality of life. What is important now? Whether you continue to work, how things are likely to change and how you can prepare for them is important. There is information here that can help in making informed choices.
Download: Living With Illness
A lot can be gained by improving communication between family caregivers and healthcare professionals. Positive outcomes include:Better care for the patientLess stress and illness for the caregiverMore efficient use of everyone's timeMore satisfaction for all concerned
Misunderstandings are common when terminal illness and prognosis are discussed. Most people, including some health care providers, are uncomfortable with the subject. Because of this, or because they want to prevent distress, health providers may use vague terms that are open to interpretation. Two people can be using the same words, but be talking about different things.
In this section you will find practical guidance, information and resources on: how to say goodbye; the importance of good listening skills; and what the dying may experience as death approaches. There is also guidance on talking to children and young adults, and practical guidance on how to break bad news.
Download: Talking about Death and Dying