Helpful Documents

This part of the website gives you easy access to all the documents currently linked to on the website. Simply select the type of document you are looking and click "search" to see what documents are in that section. If you would like to submit a document to this website please email info@thepalliativehub.com
Palliative Care: Asking the questions that matter to me

This booklet has been developed by the Palliative Care Senior Nurses Network as an aid for people seeking information about palliative care. The term palliative care can raise a number of important questions. The purpose of this booklet is to help people ask the questions they need to gain the information they need about their own illness or their loved ones illness and what role palliative care can provide. 

Download booklet: Palliative Care: Asking the questions that matter to me 

Common Words and Phrases

This is a guide to some words and phrases you may hear when planning or discussing endof-life care and treatment.

Download: Common Words and Phrases

Your Rights in Northern Ireland

This factsheet is a quick guide to your rights at the end of life in Northern Ireland.

Download: Your Rights in Northern Ireland

Living With Illness

When you have a serious illness there are things to consider. This could be for you or for those around you.

You may want to think about your quality of life. What is important now? Whether you continue to work, how things are likely to change and how you can prepare for them is important. There is information here that can help in making informed choices.

Download: Living With Illness

Communicating With Health Care Professionals

A lot can be gained by improving communication between family caregivers and healthcare professionals. Positive outcomes include:

Better care for the patientLess stress and illness for the caregiverMore efficient use of everyone's timeMore satisfaction for all concerned

Download: Communicating With Health Care Professionals

Communicating With Health Care Professionals re Prognosis

Misunderstandings are common when terminal illness and prognosis are discussed. Most people, including some health care providers, are uncomfortable with the subject. Because of this, or because they want to prevent distress, health providers may use vague terms that are open to interpretation. Two people can be using the same words, but be talking about different things.

Download: Communicating With Health Care Professionals re Prognosis

Talking about Death and Dying

In this section you will find practical guidance, information and resources on: how to say goodbye; the importance of good listening skills; and what the dying may experience as death approaches. There is also guidance on talking to children and young adults, and practical guidance on how to break bad news.

Download: Talking about Death and Dying

Talking with Children and Youth about Serious Illness

Children who are shielded from the truth are likely to worry, rely on overheard bits of conversation, or make up something in order to make sense of the unusual behaviours they’re observing. Many experts who work with children and youth believe that young people are better able to cope with situations if they know what is happening and feel comfortable asking questions.

Download: Talking with Children and Youth about Serious Illness

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