Helpful Documents

This part of the website gives you easy access to all the documents currently linked to on the website. Simply select the type of document you are looking and click "search" to see what documents are in that section. If you would like to submit a document to this website please email info@thepalliativehub.com
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Talking with Children and Youth about Serious Illness

Children who are shielded from the truth are likely to worry, rely on overheard bits of conversation, or make up something in order to make sense of the unusual behaviours they’re observing. Many experts who work with children and youth believe that young people are better able to cope with situations if they know what is happening and feel comfortable asking questions.

Download: Talking with Children and Youth about Serious Illness

Talking With Children About Dying

What should you tell children about death?

At some time or other, all those who care for children will be faced with questions about dying. Children deserve honest answers, but as adults, we get worried about saying the wrong thing. What’s the right approach?

Download: Talking With Children About Dying

Symptom Diary

This diary can be used to record your symptoms, when they occur and what you did to treat them. It can be taken to your health care appointments to help explain the symptoms you are experiencing. If your symptoms are not relieved by your treatment, call your health care provider.

Download: Symptom Diary

Health Service Executive - Glossary of Terms

The national clinical programme for palliative care is pleased to present the second edition of the palliative care Glossary of Terms (the palliative care glossary). This  document was developed as part of a process to promote clarity and consistency in the way in which we speak about palliative care and the services that are provided to people with palliative care needs. It was developed in consultation with stakeholder advisory groups to the programme.

Download: Health Service Executive - Glossary of Terms

Think Ahead

The Think Ahead form aims to guide you in thinking about, discussing, and recording your preferences regarding all aspects of end of life. It encourages you to ensure that those closest to you are aware of these preferences so that, should a time come when you are unable to express them yourself, your wishes will be clear to those caring for you or managing your affairs.

Palliative Care: Asking the questions that matter to me

This booklet has been developed by the Palliative Care Senior Nurses Network as an aid for people seeking information about palliative care. The term palliative care can raise a number of important questions. The purpose of this booklet is to help people ask the questions they need to gain the information they need about their own illness or their loved ones illness and what role palliative care can provide. 

Download booklet: Palliative Care: Asking the questions that matter to me 

Common Words and Phrases

This is a guide to some words and phrases you may hear when planning or discussing endof-life care and treatment.

Download: Common Words and Phrases

Your Rights in Northern Ireland

This factsheet is a quick guide to your rights at the end of life in Northern Ireland.

Download: Your Rights in Northern Ireland

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