Spina Bifida and Hydrocephalus

Someone born with spina bifida has an opening in the spine. A healthy spine is closed to protect the spinal cord, which is a bundle of nerves that sends messages between your brain and the rest of your body. Sometimes part of the spinal cord and spine do not develop correctly during pregnancy, leaving an opening where the spinal cord may protrude outside the body.                                                                    

Hydrocephalus, also known as "water on the brain", is a medical condition in which there is an abnormal accumulation of cerebrospinal fluid (CSF) in the ventricles, or cavities, of the brain. This may cause increased intracranial pressure inside the skull and progressive enlargement of the head, convulsion, tunnel vision, and mental disability. Although it does occur in older adults, it is more common in infants.



Republic of Ireland

Spina Bifida Hydrocephalus Ireland

Spina Bifida Hydrocephalus Ireland is a charity that aims to  provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents and carers, as well as to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.

Website: www.sbhi.ie

Northern Ireland


Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues. Working together throughout England, Wales and Northern Ireland, they strive to overcome challenges and achieve the best for you and your family.

Web: www.shinecharity.org.uk/