Cystic Fibrosis

Cystic fibrosis (CF) is an inherited chronic disease that primarily affects the lungs and digestive system of about 1200 children and adults in the Ireland. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus. This can clog the lungs leading to serious lung infections; and can obstruct the pancreas from breaking down and absorbing food. 


Republic of Ireland 

Cystic Fibrosis Ireland

CF Ireland (CFI) is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. CF Ireland also co-operates with medical professionals to give maximum assistance to both parents and children/adults with Cystic Fibrosis.CF Ireland (CFI) is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. CF Ireland also co-operates with medical professionals to give maximum assistance to both parents and children/adults with Cystic Fibrosis.

Website: www.cfireland.ie


Republic of Ireland

Cystic Fibrosis Registry of Ireland

The Cystic Fibrosis Registry of Ireland project was established in 2001 to keep the relevant medical records of each patient with cystic fibrosis in a central database. The patient records are entered onto the computer system (database) by Clinical Research Associates from the CFRI.

Website: www.cfri.ie


Northern Ireland 

The Cystic Fibrosis Trust  - Nothern Ireland and the Isle Man

Cystic Fibrosis Trust are the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. They are working to improve standards of care, from driving up quality to working with clinicians. They also offer practical support through their team of Public Affairs Officers, their helpline, and a range of welfare grants.

Website: http://www.cysticfibrosis.org.uk/

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