This map is designed for staff involved in any aspect of end-of-life care. It is intended to provide practical advice and prompts along the end-of-life journey. It is not designed to be read as a stand alone document, or to be prescriptive on an individual patient’s care, rather it provides a set of key considerations for staff in end-of-life care.
This booklet covers the main things you should know on these questions, and aims to point you in the right direction. The final days of life are precious days, often remembered in detail by those who live on, and the priority is to ensure a peaceful and comfortable death with the right level of support for you and the person you are caring for.
Being with someone you love at the point of their death is a profound experience. Nonetheless, you may find the anticipation emotionally and mentally exhausting. At times you may fervently wish for it to be over. And then you may feel guilty for thinking like this. But it is a normal and understandable response to a very stressful situation.
The guide was written based on the authors’ experiences throughout the project, and the contents dictated by the outcomes of focus groups and numerous dialogues with a range of parents, carers and health and social care professionals. Case illustrations are used throughout to ensure that the guide remains grounded in practice so that theory can relate to practice in a meaningful way.