If you are caring for someone who is in the last stages of life, or who may be soon, this booklet is for you.
Being with someone you love at the point of their death is a profound experience. Nonetheless, you may find the anticipation emotionally and mentally exhausting. At times you may fervently wish for it to be over. And then you may feel guilty for thinking like this. But it is a normal and understandable response to a very stressful situation.
This guide is the outcome of a two-year project in North Staffordshire to support individuals with a learning disability, their family and carers through their journey to the end of their life. The guide was written based on the authors’ experiences throughout the project, and the contents dictated by the outcome of dialogue with parents, carers and health and social care professionals.
Providing care for people who are dying, and supporting the people who are important to them, are profoundly important. This link to information for the public describes the care that people should receive in the last 2 to 3 days of their life, as set out in the UK National Institute for Health and Care Excellence (NICE) guideline on care of dying adults in the last days of life.
End of Life Care Map (IRE)
This map is designed for staff involved in any aspect of end-of-life care. It is intended to provide practical advice and prompts along the end-of-life journey. It is not designed to be read as a stand alone document, or to be prescriptive on an individual patient’s care, rather it provides a set of key considerations for staff in end-of-life care.
Link: End of Life Care Map